Inclusivity in Disability

World Disability Day was celebrated on December 3 to promote the rights and well-being of people with disabilities. The 2025 theme, “Fostering disability-inclusive societies for advancing social progress,” calls for a commitment to creating inclusive societies for people with disabilities, so they can contribute to social progress, ensuring a just, inclusive and equitable society for all. This week’s Community Tips explores the reality of disability in academia and how we can move beyond compliance to true inclusivity. 

Disability is more prevalent than we realize. According to the WHO, about 16% of the world population, which is about 1.3 billion people, experience significant disability.1  Nearly 11% of graduate students reported having a disability in 2020.2 This number underrepresents reality, with a report suggesting that 65% of students with disabilities do not register for accommodation, often due to fear of stigma, lack of awareness, or the administrative burden of the process. For faculty and staff, the numbers are less visible. According to the CDC, 28.7% of the U.S. adult population have a disability.4  Academia often sees low disclosure rates among employees due to concerns about bias and promotion implications.5 

When we look at the intersectionality of disability with other identities, we find additional layers of complexity. Forty percent of non-binary graduate students have a disability, compared to 12% of female and 9% of male students. Fourteen percent of Hispanic graduate students have disability, compared to 11% for white students and 7% for Asian students.6 These numbers may not truly represent the reality of disability according to different identities due to the underreporting of disability. However, this highlights how students with multiple identities navigate complex systems that are not suited to them. 

The Hidden Burden of Disability

We need to understand the hidden burden that people with disability experience, such as time, emotion, and finances. 

  • Administrative time burden: People with disabilities spend hours gathering medical reports, scheduling appointments with accessibility offices, and negotiating accommodations with instructors and supervisors. 
  • Financial burden: Persons with disabilities often bear the cost of diagnostics, therapies, and assistive technologies. 
  • Emotional burden: Having to talk constantly about disability to justify the need for accessibility or extension can be exhausting for people with disabilities. 

The Invisible Disabilities

The most misunderstood aspect of disability in academia is the prevalence of invisible disabilities. An estimated 10% of the U.S. population lives with an invisible disability,7 defined as physical, mental, or neurological conditions not visible from the outside but that limit one’s movements, senses, or activities. These include chronic pain, debilitating fatigue, anxiety, learning difficulties, mental illness, and cognitive dysfunction.8 

The burden goes beyond the condition itself. Research indicates that women with invisible chronic illness constantly face judgment and questioning about their illness being legitimate, with most women given a psychiatric label.9 A study shows that 88% of employees with invisible disabilities do not disclose it at work to avoid stigma and discrimination,10 because those who open up about long-term invisible disabilities are often isolated, leading to lower morale and reduced productivity.11 

Students with chronic illness often start missing social and academic commitments, putting them at risk of isolation and loneliness, which affects their academics. A study in 2011 found that young adults with chronic illness were only half as likely to graduate from college as their healthy peers, with 18% versus 32% graduating.12 This reality involves what is known as “spoon theory,”13 a concept that people with chronic health problems begin each day with a limited amount of energy, where simple tasks like brushing teeth cost a spoonful of energy. This explains how people with invisible disabilities may have limited amounts of energy, which affects their ability to be engaged in all activities throughout the day. 

When we think of disability, think beyond wheelchairs and canes. Invisible disabilities are real and impactful, and they come with the burden of explaining the experiences and the illness. 

Action Tips for Inclusivity

Creating an inclusive environment is a collective responsibility. Here are ways you can support inclusivity: 

Listen with Empathy: When someone shares their disability experience with you, listen without judgment or comparison. For instance, saying something that conveys “That sounds difficult, and I believe you.” Do not question the legitimacy of someone’s disability. If it is invisible, avoid statements like “You look fine to me.” People with disabilities put a lot of energy into appearing okay. 

Educate Yourself: Do not place the burden of understanding disabilities on the person. Take initiative and learn about disability in your personal and professional life. Recognize that chronic illness is the leading cause of disability in the United States. Learn about the different conditions that constitute invisible disabilities and understand the intersection of disability with other identities. These actions show genuine care on your part and will help your colleagues and team members perform to the best of their abilities. 

Challenge Stigma and Assumptions: Be an ally of people with disability, by addressing assumptions about disability. When someone questions if invisible disabilities are real, respond with facts about their prevalence and impact. If your colleagues express frustrations about accommodation requests, remind them that accommodation provides a measure of equity. Speak up when the discussion of disability seems to ignore the realities and experiences of people with disabilities.  

Advocate for Systemic Change & Inclusive Policies: Support policies and resources that improve disability inclusion. Advocate for adequate funding for disability services offices. Push for comprehensive faculty and staff training on disability inclusion, particularly regarding invisible disabilities. Support flexible work and learning arrangements that benefit people managing chronic conditions. Encourage your institution to go beyond legal compliance to genuine inclusion. A research study showed that organizations that adopted inclusive initiatives reported a 26% increase in productivity.16 

Disabilities are different: It is common for non-disabled people to misunderstand the reality of living with specific conditions. The experience of people with the same disability may be different. For example, anxiety disorders can manifest in diverse ways depending on the individual. Having knowledge of or experience with a disability is not enough to understand the unique experience of your colleague or students with the same condition. Your role is to listen and understand their experience and how to support them. Research shows that managers who are empathetic and listen to their team members’ experiences report a 63% increase in team wellbeing 16 

Support Self-Care and Community: Prioritize your own well-being, recognizing that supporting others requires taking care of yourself first. This is especially important for those who themselves navigate disabilities while supporting others. Connect with or help facilitate affinity spaces where people with shared experiences can find community. Create support groups at work, where people can share their experience and support each other. Recognize that sometimes the most valuable support is simply creating space for people to exist without having to constantly explain or justify themselves. Managers who create safe and supportive spaces for their team were viewed as more approachable than others.16 Advocating for these spaces and encouraging people to join them can make employees with disabilities feel seen. 

Respect Privacy and Be Flexible: Understand that disclosure is a choice. Someone may need accommodation without wanting to give details of their diagnosis. Focus on the barrier, like “I need written instructions because I process them better,” rather than the condition. Rigidity harms inclusion. If a policy disproportionately affects those with disabilities, reconsider it and accommodate their needs. 

Collective Action for Inclusivity

Creating an inclusive academic community means building an environment where the full diversity of human experience, including disability, is valued and supported. When we recognize that among 40.5 million people who are 25 or older and have a disability, only 21.2% held a bachelor's degree or higher in 2023, compared to 38.7% among those without disabilities,18 we see the level of exclusion in our systems. By practicing empathy, educating ourselves, improving accommodation processes, advocating for systemic change, and supporting the community, we can transform our institutions into places where everyone can learn, work, and thrive. This transformation benefits not only people with disabilities but our entire academic community, as diversity of experience and perspective strengthens our collective pursuit of knowledge and understanding. 

Facilitated Sessions with Common Ground Collective

The Common Ground Collective offers facilitated sessions on navigating difficult conversations in academic settings. Contact us at coground@iu.edu to request a session for your department or unit.

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Resources for Disability at Indiana University Bloomington

For Students 

  • Accessible Educational Services (AES): (Formerly Disability Services for Students) Supports students with documented qualifying medical conditions. Located in Eigenmann Hall #001. Phone: 812-855-7578. Email: iubaes@iu.edu 

Employee Accommodations: 

  • Staff: Contact Frank Epperson, ADA Accommodations Specialist at IU Human Resources (fepperso@iu.edu). 
  • Faculty: Contact the Office of the Vice Provost for Faculty & Academic Affairs (vpfaa@iu.edu). 

Technology 

Library 

A dedicated Library for finding books, journals, and multimedia resources on disability, inclusion, and the history of special education. 

Institute 

Indiana's University Center for Excellence in Disabilities, providing comprehensive research, training, support, and resources on disability issues across the entire lifespan.